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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 74
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Hi, I have been to see a Neurologist today, I have had pins and needles and now numbness in my hands and feet, after a really thorough examination, he was very good, he said that he thinks it is Peripal Neuropathy which is due to my RA, I have to have some blood tests and an electrode test to make sure but he seems pretty confident, I am feeling really low tonight, what else can go wrong medically wise? Thank goodness I have Malcolm, my hubbie, I truly couldn't cope without him, if anyone has this can they tell me about it thanks love Kimxx 
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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OH i am so sorry Kim.
I have a lot of neuropathy now, managing peripheral and also autonomic neuropathy now (yawn) I do find the pain so much easier on the gabapentin.
Please feel totally free to have a wallow. It is NOT BLOODY FAIR and that is that! I wish there was someone to write and complain too because I would Kim, for you and several others on here. It is not on. Why cant rapists, paedophiles and terrorists get crappy diseases not the goodies???
I sometimes find reading a sad story or watching steel magnolias or similar and having a good cry lets it go for me.
then I need to do something I can control like having my nails done, having a hair cut, buying some new cushions for the sofa and changing things a bit at home.
Much MUCH love
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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I am so very sorry to hear this Kim, and I hope that they will give you meds to help control this and keep the symptoms at bay..
Praying for you,
Love,
Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 854
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Have a good cry Kim as you are allowed to. This is a terrible disease which brings so many lousey variables into its fold.
I agree with Jenni 100% . Why is it us for goodness sake?
Anyhow, I am so glad that you have Malcolm to give a hug and make you a cup of tea or whatever. Thinking of you,
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Kim
So sorry to hear about this.
There are several people on the site who suffer from periphal neuropathy and I am sure they will pick up on your post.
I just want to send a big cyber hug to both you and Malcolm
Lots of love
Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Kim,
So sorry to hear you have peripheral neuropathy.
Hope you can get some effective treatment.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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So sorry to hear you have even more complications. I hope they don't don't take too long to get some treatment sorted for you.
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Kim thought id send you a cyber hug so sorry hear that rotten ra has done that. a good girly movie may help or a friend over for chat. lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Kim, just joining everyone with support for you. It feels like "not something else" but hopefully the neurologist can help you, thinking of you Kim x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Kim , sorry to hear this , but hopefully you will be able to get some medication to help, i agree what have we all done to deserve this disease ! A good cry does help
Sophie x
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 585
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Hi Kim
I am sorry you are going through this
it is awful to have the pins and needles in both hands and feet (I do not mean to sound bad) I have had the same for the past three and half years (but mine is due to the RA and MS) I am glad you do not have this
you will feel better when you have a really good cry (done that too)
hope you feel better soon
take care I hope it goes away for you soon
Mary L
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 74
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Hi, thanks very much everyone, I was sitting up until 1am last night, I think better when it is quiet, had a bit of cry to be honest, I think I was pinning my hopes of him being able to help me, I have bounced back a little, I have got used to the RA so I will get used to this too love Kimxx
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